Category: RumorsAndTumors

I wanted to take a minute to list the organizations that have been very helpful to me and why. I will offer the caveat that I have not done the full deep dive on the financial structure of each of these. I know there are ways that people try to track effectiveness and costs on…

I’ve been on Kisqali for one cycle and it has gone well, which brings me to the other drugs that I’m on. I’ve been on Anastrozole, an aromatase inhibitor (sometimes called an AI), since February 1st and overall it has been ok. So, what is it? Because my breast cancer was hormone receptor-positive, I need…

As I mentioned in my last post, I will start Kisqali in April. But because I will take it, it changed the type of hormone therapy drug that I have already started taking, so I thought I would first explain why I’m taking Kisqali. As a reminder, the main goal now is to stop the…

Today was the last day of radiation! Generally, I’ve held up pretty well for it. My skin is a little red, but not too irritated. As for fatigue, I have been a little tired. However, I think that surgery knocked me out so much that as I’ve healed from it, I’ve actually been gaining energy…

A few of you asked if the radiation machine was fixed and yes, it was fixed the next day. So no clinical outcome delays, just my annoyance at not having it wrapped up in January. And having the five-day cycle end on a Monday instead of Friday! But it is all progressing fine. I see…

Ok. I was really slow to update you. I did get the final drain removed two days before Christmas. I still had to rest and take things easy as there was a lot of swelling remaining. A big thanks to all the family who cooked and prepped for the holidays! Getting the drain out, though,…

One drain in, one drain still there. And the advice is that to get it off, I need to stay as still as possible. The nurse suggested pretending that I had the arm in a sling to avoiding it. But that’s actually kind of awkward, so instead I borrowed a sling. It isn’t just annoying…

I’m almost two weeks out from my second surgery and well, I’ve been grumpy. Which probably has me less excited to want to give updates. It’s not so much because I want to hide the pain or grumpiness, but just that I’ve not felt like doing much of anything! Overall, surgery went well, but I…

Thanksgiving Day seems like a good time to thank all of you for everything you have done for us since my diagnosis and through my father’s own illness and death. A short list of ways people have helped us out: I listed all of this just remind us all that there are so many different…